Best of luck with scheduling your surgery. Praying for you, family and the doctors.
I found something out at my specialist today…
- Thread starter DawgsNCowboys87
- Start date
So sorry to hear this news. You sound like a warrior fighting a long battle you didn't ask to be a part of. Praying that God continues to give you physical and mental strength to fight this battle and you finally catch some breaks.
I'm sure you already have an amazing spine team but the guy below is pretty much the GOAT. Even a consult over your scans would be worth it if you could arrange it.
doctors.columbia.edu
I'm sure you already have an amazing spine team but the guy below is pretty much the GOAT. Even a consult over your scans would be worth it if you could arrange it.
Lawrence G Lenke, MD, Orthopedic Spine Surgery, New York, NY | NewYork-Presbyterian Allen Hospital
Lawrence G Lenke, MD at NewYork-Presbyterian Allen Hospital in New York, NY specializes in Orthopedic Surgery, Spine Surgery, and Orthopedic Spine Surgery. Call today (212) 932-5100.
Thanks man that means a lot to me. Also really gave me a laugh out loud. A good laugh lol. I’m thinking of cooking tide pods I hear they’re better than crab cakes
but in all sincerity i truly appreciate it. Sorry I’ve been mighty exhausted lately. I would’ve gotten back faster. You guys have been great to me!I promise you I will. I’m a tough cookie I just am overwhelmed by you great guys support. Thanks for the prayers so much!!
Thanks so very much for your kindness and understanding as you summed it up perfectly and your exactly right I don’t know who would ever dare be a part of this I’ll def check about him but it’s going to be Neuro Surgery when it comes down to it. I’m still gonna research it trust me and thanks so much for the info. However Mayo Clinic in Rochester, MN are Considered the best in the world. Plus they’re willing to pay the rest of what my insurance doesn’t in case. As they studied my spine for weeks and my case of Ankylosing Spondylitis and Muscular dystrophy. Told me they’d never seen anything quite like mine. Considering I was also diagnosed with Marfans Syndrome. I apparently wasn’t spared much. Thank you again and again. I woke up today bleeding out of many of my veins and coughed a lot of blood up that I had to spit out. Very large amounts. So it’s getting worse fast. Thank you and everyone so very much. I’ve got to get this show on the road if I want to live. I go to see a specialist before Mayo this upcoming week. I’ll keep everyone posted. I’m very worried about my fiance in case something happens to me. My grandmother as well. Sorry to complain. I mean it.So sorry to hear this news. You sound like a warrior fighting a long battle you didn't ask to be a part of. Praying that God continues to give you physical and mental strength to fight this battle and you finally catch some breaks.
I'm sure you already have an amazing spine team but the guy below is pretty much the GOAT. Even a consult over your scans would be worth it if you could arrange it.
Lawrence G Lenke, MD, Orthopedic Spine Surgery, New York, NY | NewYork-Presbyterian Allen Hospital
Lawrence G Lenke, MD at NewYork-Presbyterian Allen Hospital in New York, NY specializes in Orthopedic Surgery, Spine Surgery, and Orthopedic Spine Surgery. Call today (212) 932-5100.
Thank you so much for your prayers and for your kind message during this increasingly hard time! Hope you know how grateful I am!
You aren’t complaining and you don’t owe us any sort of apology. You are part of a small community of people who may not know you, but who care about you. The only way most of us will know what is going on with you is if you tell us, so share as much as you would like as often as you would like. Like so many others in this thread, my prayers are with you, your family, and your medical team.
Thanks so much. You have no idea how long I went back and forth about whether to even make the post. It’s really not my nature and I usually wouldn’t have if things weren’t so dire.
Man, sorry to hear all that. I thought I was bad with degenerated discs, and I'm twice your age, but relatively speaking mine is nothing. Hope the next surgery goes well. Your disease must be quite rare?
Sorry... my surgery is Tuesday. It is only my last two toes, but I'm tired of the knife too.
That’s still most definitely an aggravating and 17-*** thing to deal with, as that’s what my first spinal surgery way back in 2012 was for—or at least that’s what they thought. My last surgery made any lumbar fusion look like child’s play: 20 levels at once, including going through my throat, which caused me to lose my ability to swallow after I was taken off intubation. They told me at the time that I would never be able to swallow again. Also yes with severe cases it’s pretty dang rare only affecting about 1 in a few thousand roughly. Cases such as mine that are ultra severe reaching end stage by the time my age, 38, are extremely rare. In my case I have Muscular Dystrophy I’m fighting at the same time. Makes things so much harder. Along with other stuff. I don’t know how I won the disease/illness lottery unless it had to do with my mom drinking while I was in the womb.
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I’m sorry as well, after a good many surgeries a man get’s tired of the knife. No matter why or for what. I wish you the absolute best in yours. Praying for you.
Praying for you and good results that result in healing. Bulldogs are with you!
Thank you so much. It means a lot more than you know to me. I’ll be honest, me making it out alive the odds are at this point stacked against me. Yet I’ve been told that before, the difference is I am in the and stage of my disease. One of a few with almost 100 percent mortality rates. Yet still I remain optimistic as I have beat the odds before but never anything like this, and I’ve officially had the gnarliest of surgeries at Vanderbilt. So maybe I do have a little bit of hope! I thank you more than you know for your kind words of hope and prayers that mean so much to me! The main thing is they’ve got to get my vascular bleeding under control if they can at the Mayo Clinic. I tried to change my socks today and they were stuck to my legs so bad when I pulled em off blood just poured from my veins, hell I can’t even think about scratching anywhere. Thanks for your post yet again, I really appreciate and need the prayers right now.
Sorry for the long message.
Thank you very much it means an awful lot. I sure can use them
. Again thank you!Thank you as well as I definitely need them. I had fluid leaking from the upper back of my neck earlier. Hope it’s not what I think it is. I seriously appreciate you.
I have some CT scans for tmrw like a lot. I say tmrw but technically it’s today. I’m pissed at what time and how early they scheduled me so I’m afraid I’m gonna have to push it back until Friday possibly. Hell I’m so so very weak and in so much pain these days it takes me multiple hours just to take my meds, get ready, and get myself there. Sorry for grammar etc I did even aim for proper typing or punctuation due to trying to deal with the process of getting to sleep. If you want to call it sleep. I’m definitely gonna call early as it’s an assload of them. Then this coming week I have about 5 hours of MRI with contrast. Similar to CT scans. The contrast I mean.
I hope I make it to the egg bowl and get to see State win it. That would mean the world to me truly and a good year a really surprising good year and don’t blow Texas and Tennessee type losses even Florida. I know yall get my point as teams we play change. Also dear lord help me as I fell asleep on my couch as i accidentally fell asleep on my little couch in my bedroom wrecking my spine. 
and a good year a really surprising good year and don’t blow Texas and Tennessee type losses even Florida. I know yall get my point as teams we play change. Also dear lord help me as I fell asleep on my couch as i accidentally fell asleep on my little couch in my bedroom wrecking my spine. I can’t seem to find the thread that Seinfeld posted. My vision is bad and I may have over looked over it. I’m someone knows please leave me a link is all I ask and thanks in advance. The one where we can bet on team’s that he started…
DawgsNCowboys87 Pool - Week 0 - Forums
First and foremost.... @DawgsNCowboys87, keep up the good fight buddy and we're in your corner. We're going to keep this really simple, and as long as people are having fun with it, we'll keep it going each week. Here are the rules: 1. Each week, I'll be taking $10 donations to support...
Thanks so much. My vision is garage these days.DawgsNCowboys87 Pool - Week 0 - Forums
First and foremost.... @DawgsNCowboys87, keep up the good fight buddy and we're in your corner. We're going to keep this really simple, and as long as people are having fun with it, we'll keep it going each week. Here are the rules: 1. Each week, I'll be taking $10 donations to support...www.on3.com
Also thought I’d post an update SPS family:
Everything is getting worse. I’ll have all my 6-8 hours of imagining done first of this week before they’ll operate so I have all my CT’s set with contrast focused on blood clots from the fluid leaking out like crazy and the fluid buildup it’s self. Then many hours of MRI with contrast focused on each and every section of my spine. We already know how bad it was from my last ones but it’s gotten so much worse I need new ones as my Ankylosing Spondylitis is causing my actual spinal cord to be compressed or squeezed on. Not to mention the full and complete breakdown of my last spinal surgery. The squeezing on my cord is causing issues like recently the inability to urinate for hours like 6 hours when i really need to. Like last night it was excruciating, some days I feel I can’t hold up anymore until Surgery but I’m not a quitter. All these bone spurs between my vertebrae are causing full lock up and involuntary yell’s out of me. Brain jarring pain.
Everything is getting worse. I’ll have all my 6-8 hours of imagining done first of this week before they’ll operate so I have all my CT’s set with contrast focused on blood clots from the fluid leaking out like crazy and the fluid buildup it’s self. Then many hours of MRI with contrast focused on each and every section of my spine. We already know how bad it was from my last ones but it’s gotten so much worse I need new ones as my Ankylosing Spondylitis is causing my actual spinal cord to be compressed or squeezed on. Not to mention the full and complete breakdown of my last spinal surgery. The squeezing on my cord is causing issues like recently the inability to urinate for hours like 6 hours when i really need to. Like last night it was excruciating, some days I feel I can’t hold up anymore until Surgery but I’m not a quitter. All these bone spurs between my vertebrae are causing full lock up and involuntary yell’s out of me. Brain jarring pain.
Thanks for posting so I can keep you in my prayers. I am so sorry you are suffering with the disease and the surgeries. If it is any comfort God rewards those that go through trials in this life when they arrive in the after life. Also, I hope you feel better sharing your experience with your friends here.
Man I'm so sorry you're having to deal with this. I couldn't do it. You're certainly tougher than me.
Absolutely trying appreciate and thank you so muchHang in there man. Praying for you.
Thank you so much for your prayers
I couldn’t be more appreciative. Sorry, I don’t know what happened—I had my entire reply typed out to you, and it just disappeared. I guess I accidentally hit the wrong button. Thank you so much for praying for me and for such a heartfelt post. I truly appreciate it from the bottom of my heart. I also share the same beliefs about the afterlife, as I have suffered for much of my life and have seen and dealt with things no person should ever have to experience. Those are separate things, though, and not related. I definitely feel better after sharing. It feels like talking about everything has taken some of the weight of my pain and suffering off my shoulders and made me feel like I can open up here among friends who truly mean well and genuinely try to lift me up percent. I’m so thankful!Thank you for your very kind post! That means a lot to me. Sometimes we just don’t know how strong we are until we’re forced to be, so don’t sell yourself short. I’ve had to be this strong since childhood simply to stay alive and keep going. Giving up was never an option. I may not have as much time as I’d like because of my illnesses, but I’m praying that my doctors can fix what’s going on and give me much more time. No matter what happens, though, it will never be because I gave up on life. I’ve certainly had dark thoughts during some of the hardest moments, but ultimately, quitting just isn’t who I am. Thank you again for such a heartfelt post.
I meant to reply back to you and say thank you so much for the post and how much I truly appreciate it. Thanks from the bottom of my heart. Sorry I’m late getting to it but I’m trying to reply to everyone who left me a heartfelt/kind message. I’m still trying to catch up. Thanks again!!
Thank you so much! I don’t know how I missed such a genuine and thoughtful post with prayers for me, my family, and the team of surgeons and doctors during it. I appreciate your kind post so much!
I do have another update to share, and again, I’m sorry. I went in today for an ultrasound and CT scan. I was able to tolerate that fairly well because I was sitting up. I think the CT hurt my spine even worse than it already was, as they were checking for fluid coming from my gut. Anyways, my spine is in such bad shape that when I worked my way onto the CT table, I had to bend my spine upward while a person who didn’t know me this time was lifting me up. That caused my spine to completely lock up, forcing an absolute scream out of me that I had no control over, and I heard a cracking sound at the same time. I had already warned them ahead of time that they have to be extremely careful with me. Now I can literally barely, barely get around, and I have a minimum of 3.5 hours of MRIs this morning. I honestly don’t know how my spine is going to be able to handle it. I’m sorry for carrying on, but I’ve probably had 100 MRIs before, and things have never been nearly this unbearable pain-wise. This is the first time I truly feel like my spine may not be able to handle it. I’m absolutely worried because they’re doing contrast/dye MRIs of every section of my spine, but today absolutely murdered my spine, and I have an insanely high pain tolerance. Yeah, I honestly don’t know what to do. Maybe they’ll give me a pain shot. I’m filming everything going forward and keeping a pain journal. Please pray for me because I am absolutely at a loss.
Please pray for me because I am absolutely at a loss.
keep up the good fight, and absolutely praying over youI do have another update to share, and again, I’m sorry. I went in today for an ultrasound and CT scan. I was able to tolerate that fairly well because I was sitting up. I think the CT hurt my spine even worse than it already was, as they were checking for fluid coming from my gut. Anyways, my spine is in such bad shape that when I worked my way onto the CT table, I had to bend my spine upward while a person who didn’t know me this time was lifting me up. That caused my spine to completely lock up, forcing an absolute scream out of me that I had no control over, and I heard a cracking sound at the same time. I had already warned them ahead of time that they have to be extremely careful with me. Now I can literally barely, barely get around, and I have a minimum of 3.5 hours of MRIs this morning. I honestly don’t know how my spine is going to be able to handle it. I’m sorry for carrying on, but I’ve probably had 100 MRIs before, and things have never been nearly this unbearable pain-wise. This is the first time I truly feel like my spine may not be able to handle it. I’m absolutely worried because they’re doing contrast/dye MRIs of every section of my spine, but today absolutely murdered my spine, and I have an insanely high pain tolerance. Yeah, I honestly don’t know what to do. Maybe they’ll give me a pain shot. I’m filming everything going forward and keeping a pain journal.
I absolutely am going to do my best and lord knows prayers are what I need. I can’t even fathom how I’m going to get through MRIs that I’d normally not even bat an eye lash at. That’s just how much pain I’m in that was absolutely made so much worse by a person id forewarned. Thank you so much for the thoughtful post it means a lot! I just had to cancel an appointment with my cardiologist over my constant afib it’s that bad. Appreciate you again also didn’t take time to proofread this as I’m shaking in pain and never even went to bed last night/this morning. Feels like I might not make to surgery unless I can get more relief. What’s bad is they were looking for the source of the fluid and likely injured me worse.
God bless you, man.....praying over you for relief and comfort and wisdom for your medical team
Don't stop fighting the good fight......
praying specifically for you:
-relief from pain, in any measure, to make it through the scans
-comfort and peace
-your caregivers that they move you and position and aid you as you continue this fight
-your afib.....that your heart finds the rhythm it needs and you can not worry over this
-that in all of this, you find reason to be comforted and smile through the pain.
-that in all of this, you feel the good Lord's presence with you
Today, I am grateful that you shared this ongoing fight and the obstacles and "potholes".....so a group of folk on this message board can lift you up and your situation in prayer....... sounds crazy for a message board, but goodness, it's one of the many ways we stay connected and in community these days.....keep us updated
Thanks so very much for the prayers and also for such a genuine reply. That’s exactly what I need so badly right now: prayers and this amazing family we have on here that has rallied around me during a time when I need it the most. When I’m fighting for my life. Thanks you lots again.
Thank you so much for this. Seriously, every single part of what you said means more to me than I can really put into words right now. The pain has been absolutely brutal lately, and knowing that people on here are genuinely praying specifically for me, my heart, my scans, the people taking care of me, and even just for me to have a little peace through all of this really gets to me in the best way. I know it probably does sound crazy to some people that a message board can become this kind of family, but that’s exactly what it feels like to me right now. I’ve shared some extremely personal things on here, and instead of being judged or brushed off, I’ve had people rally around me, pray for me, encourage me, and remind me that I’m not fighting all of this completely alone. I’m going to keep fighting as hard as I can. I’ve been through some terrible things in my life and I’ve never been one to quit, and I don’t plan on starting now. Thank you again from the bottom of my heart for taking the time to pray for me so specifically and for continuing to lift me up. It truly means more than you know.
I'm so sorry you're going through this man. Keep fighting and keep praying. I know I'll be praying for you, and I know God loves you. Keep the Faith and keep fighting.
Thank you so much, man. I truly appreciate the prayers and the encouragement more than you know. I’m definitely going to keep fighting and keep the faith. I’ve been through too much in my life to quit now, no matter how hard things get. Knowing people are praying for me and genuinely care means a whole lot right now. Thank you again from the bottom of my heart.
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