Apparently I’m dying. First let me explain what if you have the patience. I have Ankylosing Spondylitis in the worst way at only age 38, along with Muscular Dystrophy. Point is I have been doing just as AS says in the most aggressive cases like my mine, Vascular Disease would be what brings me down. I’ve literally been leaking blood like an oil change out of my mid to lower leg’s below the knee. I’ve battled the 17 out of this disease and although I’m only 38 going on 39 I’m sick of having the largest spinal surgery ever done at Vandy. Now I’ve had a full breakdown of that surgery nevermind the one before that. Of course I’ll keep pushing forward and try to live through the next surgery at the Mayo Clinic in Rochester, Minnesota. Another 14-16 hour minimum full 20 plus level annular fusion from complete breakdown of my spine already. I’m sorry to complain I just got some pretty devastating news today. You guys have no idea how hard I’ve debated putting this on here. Sorry if it bothers you guys. I absolutely had to get it out.
I found something out at my specialist today…
- Thread starter DawgsNCowboys87
- Start date
Post what you want. Sorry you got that news.
Good morning. I am sorry for the diagnosis. Prayers sent.
After pre op which how quick will be determined by how quickly they can line up such a surgery like this. Thanks
so much for your concern and asking. Also I haven’t forgotten what we talked about and I won’t drop the ballThanks so very much i appreciate it more than you know. Some how all the replies seemed to have gotten mixed up or it looks like I got two of yours somehow mixed up. My fault im in miserable pain. Sorry HBP and Jethreaxdawg I got y’all’s replies backwards
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Prayers and best of luck. Sorry to hear this. Try to always do whatever brings you and those around you joy and happiness
I’ll get back to you guys later today forgive me as of now I’m too miserable to stand up straight. Had to get it off my chest. I appreciate each and every one of you. I’m too weak to stay up any longer.
I always focus on the others part and haven’t gotten to the me part yet. In person I mean
May God give you peace, comfort, and joy through your trials and tribulations. Praying for you and yours
I appreciate you sharing.......through all the "faults" of the many posters here (including me), this board has always seemed to be a place filled with folks that give a rip when someone is in a hard place........on some of my worst days this board has been a great escape.........praying for peace in this journey for you, and strength to continue the fight my friend.
I'm sorry that you are dealing with this. Praying for you and your family.
Prayers up brother..........Hang in there........
God's peace to you and your loved ones as you go through this. Prayers for good health and good spirits.
I hope the surgery goes well and recovery is faster than expected. It’s things like this that help me be grateful for being healthy and gives me motivation to take advantage of that gift. So, thank you for posting, and I’m sorry it’s your path to endure.
Never hesitate to “get it out” here.
If this board gives someone in your situation a pick me up, I can’t think of a higher purpose for us.
I hope you get some better news and outcomes soon.
Dang, man. That's some tough medical issues you're having to live with. I hope the upcoming surgery will go well and get you some relief.
Awful to read this- ugh. Pushing through long term pain, illness, and disease takes its toll on everyone. Its impossible to be positive and upbeat 100% of the time.
I am glad to see there is a plan from your care team, even if it may seem insurmountable.
As for posting about your health news here, SPS doesnt need another thread about whether Lebby is on the hot-seat. SPS does need occasional updates like yours from posters, when they are comfortable and wanting to share.
I am glad to see there is a plan from your care team, even if it may seem insurmountable.
As for posting about your health news here, SPS doesnt need another thread about whether Lebby is on the hot-seat. SPS does need occasional updates like yours from posters, when they are comfortable and wanting to share.
My nephew has DMD. He just turned 17 and I see the struggles that he and his parents encounter. It's tough and can't imagine what you are going through.
There are many of us fighting our own health battles that we don't talk about much and many more that are/have accompanying friends and loved one through their journeys and understand . Please don't apologize . I'll be praying for you. God speed .
Thanks for sharing and heart felt prayers for you. Not just for healing but also for your mental state. Keep your head up Brother!
The Pack will always be here for you, please keep us posted.
The Pack will always be here for you, please keep us posted.
Thanks to everyone I’m having an updated MRI already did most of the bloodwork etc. I couldn’t be more appreciative I just wanted to thank each and every one of you that have been supportive. I’m incredibly exhausted and hurting badly so I’m lying back down. I’ll be back this later afternoon. I’m truly touched and greatly appreciate yall and will read ever post today shorty. Also know I didn’t bother with proofreading it grammar/punctuation. Lol
Hey man, so sorry for what you are going through. I hope you have a good social support system that can walk with you through this. My wife deals with chronic health problems, and I know how exhausting and demoralizing it can be. I know the word "privilege" gets thrown around in woke-ish ways that are not helpful. But after experiencing what my wife and some of her family have gone through, I truly believe that health privilege is a thing. When I was a kid, no one in my family was really ever sick. I had no idea what so many have to go through until my wife became ill... and stayed ill - for years.
Praying for you and your family, brother. Keep fighting
I will definitely be praying for you in your surgery and your pain. I hope like hell that you find relief.
God bless you and everyone around you.
Besides being cathartic for you, it is relevant for anyone who reads it putting their own daily miseries into perspective.
I hope the treatment you're receiving helps. God bless, and keep us informed.
Besides being cathartic for you, it is relevant for anyone who reads it putting their own daily miseries into perspective.
I hope the treatment you're receiving helps. God bless, and keep us informed.
Takes great courage to share the most difficult things about ourselves, and its hard to imagine much that could be more difficult than this. Cheers to you, brother. Hope you find at least some joy each day in this journey.
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