I found something out at my specialist today…

[pmack3641]

Apparently I’m dying. First let me explain what if you have the patience. I have Ankylosing Spondylitis in the worst way at only age 38, along with Muscular Dystrophy. Point is I have been doing just as AS says in the most aggressive cases like my mine, Vascular Disease would be what brings me down. I’ve literally been leaking blood like an oil change out of my mid to lower leg’s below the knee. I’ve battled the 17 out of this disease and although I’m only 38 going on 39 I’m sick of having the largest spinal surgery ever done at Vandy. Now I’ve had a full breakdown of that surgery nevermind the one before that. Of course I’ll keep pushing forward and try to live through the next surgery at the Mayo Clinic in Rochester, Minnesota. Another 14-16 hour minimum full 20 plus level annular fusion from complete breakdown of my spine already. I’m sorry to complain I just got some pretty devastating news today. You guys have no idea how hard I’ve debated putting this on here. Sorry if it bothers you guys. I absolutely had to get it out.

May God bless you for your next surgery and praying that it’s successful. Thank you for sharing

 

[T-TownDawgg]

We've had words on here before.

Fight.
Laugh whenever you can.
Get back home.

I vow to bring the cigars and bourbon of your choice, and we'll argue in person. Then we will laugh like hell at the craziness of life.

 

[Wesson Bulldog]

Peace be with you.

 

[FactCheckerBot]

Fact:

Praying for you and your healthcare providers.

 

[mcdawg22]

Hang in there man. Keep us posted and stay strong.

 

[Ozarkdawg]

Come and fuss, complain, update and unload as much as you want or feel you need to.

Prayers for
Your physical and mental stress
Your family and friends
Your medical support team

 

[TaleofTwoDogs]

When I was fighting cancer, I had this hanging on the wall... "Your illness does not define you, your strength and courage does." Good luck and God bless.

 

[PointAfter]

Prayers for you and yours

 

[FormerBully]

Prayers sent. Fight like hell and trusts those around you to fight for you when you can’t.

 

[DawgsNCowboys87]

Prayers and best of luck. Sorry to hear this. Try to always do whatever brings you and those around you joy and happiness

Yeah, that’s another problem—trying to keep my fiancée of 15 years calm. She’s having a hard time imagining life without me. We have a special relationship, and if you think the word ‘soulmate’ is corny or not real, then you haven’t met us. It destroys me knowing that I have diseases that will likely take me sooner rather than later, but I can’t seem to find the right words to convey what my doctors have told me.

 

[InTheIttaBenaHotSun]

Praying for a miracle

 

[DawgsNCowboys87]

Awful to read this- ugh. Pushing through long term pain, illness, and disease takes its toll on everyone. Its impossible to be positive and upbeat 100% of the time.
I am glad to see there is a plan from your care team, even if it may seem insurmountable.

As for posting about your health news here, SPS doesnt need another thread about whether Lebby is on the hot-seat. SPS does need occasional updates like yours from posters, when they are comfortable and wanting to share.

That really touched me for some reason. Seriously thanks from the bottom of my heart! Also the same to everyone else reaching out. I’m sorry I’m just too weak to get to everyone immediately but I will.

 

[DawgsNCowboys87]

I’m sorry guys so many of you touched my heart and I couldn’t respond to everyone as I’m feeling incredibly grateful also incredibly exhausted. I want to think every single one of you and I will after getting more rest. Forgive me if I didn’t get to yours until I get up. I won’t forget a soul.

 

[DawgsNCowboys87]

My nephew has DMD. He just turned 17 and I see the struggles that he and his parents encounter. It's tough and can't imagine what you are going through.

Thank you so very much much. I am suffering from a very similar form myself it’s just gotten incredibly aggressive. Seems as though right now if anything is close to taking me down it’s that damn spine contorting Illness Ankylosing Spondylitis in my case. Or probably both. I wake up everyday studded im still alive, with blood leaking through my hose socks I bought. I’m about find out at least if they can draw any fluid off of my gut. I pray so just so it doesn’t hurt to bad to even walk or move around.

 

[bolddogge]

I head to sixpack this morning to hear what's going on to validate my feeling that this year's football team is wasting my money yet again this year, I get slapped with the reality of what's really important in this world. So instead of being PO'ed about how the games may go, maybe I should be thankful for the good excuse to stop working for a while and the ability to head to Starkville to enjoy the weekends with friends and family. Praying for your healing and relief from your condition.

 

[DawgsNCowboys87]

When I was fighting cancer, I had this hanging on the wall... "Your illness does not define you, your strength and courage does." Good luck and God bless.

I truly believe in that saying as I have been fighting against numerous things as a kid. This is not easy for me to say but my Sister passing at 13 I was 5. Then my dad dies in a most unlikely way dove hunting accident when I was 8. When I young an actually believed I was cursed. It was ptsd and major anxiety disorder I have to take meds for to this day that I’m not proud of. I’m proud to be still fighting though and being alive still. Thanks so much. Sorry you had to go through that at all. I’d be proud of the fight you put up and won! Maybe I can win also! I know I said too much but it means a lot.

 

[DawgsNCowboys87]

We've had words on here before.

Fight.
Laugh whenever you can.
Get back home.

I vow to bring the cigars and bourbon of your choice, and we'll argue in person. Then we will laugh like hell at the craziness of life.

Yep we’re good in my book lol id pretty much forgotten it. That absolutely sounds like a plan to me if/when I make it. Lol sounds like a good offer to me. Let’s do it

 

[DawgsNCowboys87]

I just want to say thanks to each and every one of you personally and I’ll do it. I’m out of energy right now and need a nap but I’ll be back soon!

 

[Seinfeld]

A thought just crossed my mind to show some support and maybe have a little fun with this. New thread incoming....

 

[M R DAWGS]

Praying for you man, I hate you are going through this.

 

[Dawg1976]

So sorry for all you’re going through. Please do keep us updated. Prayers sent.

 

[DawgsNCowboys87]

We've had words on here before.

Fight.
Laugh whenever you can.
Get back home.

I vow to bring the cigars and bourbon of your choice, and we'll argue in person. Then we will laugh like hell at the craziness of life.

Sounds like a fun and I’m down for that. Thanks a lot I really appreciate it

 

[DawgsNCowboys87]

Fact:

Praying for you and your healthcare providers.

Thank you so very much from the bottom of my heart. I need all the prayers I can get certainly!

 

[DawgsNCowboys87]

Come and fuss, complain, update and unload as much as you want or feel you need to.

Prayers for
Your physical and mental stress
Your family and friends
Your medical support team

That’s a very kind response that makes me feel more at ease, so thanks for that and thank you especially for the prayers!

 

[DawgsNCowboys87]

May God bless you for your next surgery and praying that it’s successful. Thank you for sharing

Thank you for responding and making me feel comfortable in doing so, I appreciate your your post so much and I do certainly hope and pray that the good lord does bless me.

 

[DawgsNCowboys87]

Praying for a miracle

That’s what it will be and I’d like to thank you kindly and hope that it works thanks again

 

[DawgsNCowboys87]

Whoa. When is the next surgery?

I don’t know how I missed your reply as it’s like the first, it will be in less than 3 weeks maximum. Maybe actually much quicker even hopefully as they see how severe it is I still have some pre op things scheduled then I’ll have an exact date. One thing I really need done first is have all this excess fluid drawn off of me. It’s getting worse daily so they will speed things up I’m sure of it. I do not want to die and I doubt hey want that on them.

 

[DawgsNCowboys87]

Peace be with you.

Thank you very much, and with you

 

[DawgsNCowboys87]

I’ll admit this is the first time I’ve been scared of a surgery and kind of worried about dying. I’ve had so many surgeries even the largest don’t phase me when they call my name. Even the last surgery where they fused up everything literally 20 levels as the rest had previously been fused which was just a lumbar fusion. I normally walk right in like I’m walking into Walmart but this scares me I’m not going to lie. I hate being intubated and all that but most lmpotantly they must drain this fluid first which I’m sure they are but if they done with me being a easy bleeder or free bleeder they’d better hurry up and get it done. So yeah it can’t come soon enough. I pray that’s the case.

 

[PapaDawg]

Praying for you and your family. Keep pushing forward. Post what you want when you want.

 

[leeinator]

Apparently I’m dying. First let me explain what if you have the patience. I have Ankylosing Spondylitis in the worst way at only age 38, along with Muscular Dystrophy. Point is I have been doing just as AS says in the most aggressive cases like my mine, Vascular Disease would be what brings me down. I’ve literally been leaking blood like an oil change out of my mid to lower leg’s below the knee. I’ve battled the 17 out of this disease and although I’m only 38 going on 39 I’m sick of having the largest spinal surgery ever done at Vandy. Now I’ve had a full breakdown of that surgery nevermind the one before that. Of course I’ll keep pushing forward and try to live through the next surgery at the Mayo Clinic in Rochester, Minnesota. Another 14-16 hour minimum full 20 plus level annular fusion from complete breakdown of my spine already. I’m sorry to complain I just got some pretty devastating news today. You guys have no idea how hard I’ve debated putting this on here. Sorry if it bothers you guys. I absolutely had to get it out.

God Bless you bro. All I can say is if you don't know or have accepted God/Jesus as our creator and savior, now is the time.... while you still have time. None of us are guaranteed any length of life from a baby to a 100 year old. Earthly life is a short experience regardless of how long one lives. Eternal life is forever and ever. Gitter done and hopefully we'll see you on this side and the other.

 

[ReverseCowbell]

Apparently I’m dying. First let me explain what if you have the patience. I have Ankylosing Spondylitis in the worst way at only age 38, along with Muscular Dystrophy. Point is I have been doing just as AS says in the most aggressive cases like my mine, Vascular Disease would be what brings me down. I’ve literally been leaking blood like an oil change out of my mid to lower leg’s below the knee. I’ve battled the 17 out of this disease and although I’m only 38 going on 39 I’m sick of having the largest spinal surgery ever done at Vandy. Now I’ve had a full breakdown of that surgery nevermind the one before that. Of course I’ll keep pushing forward and try to live through the next surgery at the Mayo Clinic in Rochester, Minnesota. Another 14-16 hour minimum full 20 plus level annular fusion from complete breakdown of my spine already. I’m sorry to complain I just got some pretty devastating news today. You guys have no idea how hard I’ve debated putting this on here. Sorry if it bothers you guys. I absolutely had to get it out.

As strange as we may be, SixPackSpeak is a community, and communities can be incredibly helpful and supportive when dealing with life.

Thanks for sharing your battle and God Bless