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Finally on transplant list at UK

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Bigdaddyboo71

Junior
Jun 14, 2017
33
208
0
Some of youmayknow that I have kidney disease. Over time,my kidney disease has gotten worse andnow they are not working enough to keep me alive. This is what I’m dealing with now, and my options are limitedto dialysis treatments for the rest of my life or a kidney transplant.

Getting dialysis requires me to do it five nights a week for about 3 hours a night. This works well enough to keep someone alive but is not like a working kidney. A transplant would offer me the hopes of living longer,healthier and more normal life. It would also give me more time to do the things I love like spending time with my family and friends.

Getting a kidney transplant is not easy. There are over 100,000 people waiting for a deceased donor. Time isnot on our side. Some people wait for many years and others die while waiting. The average wait time for a deceased donor is about 5 years. There is another option: receiving a kidney from a living donor.

Asking friends or family members to consider donating a kidney is difficult, but it greatly improves the chances of getting a transplant and improves my chances of living longer and healthier.

You might not know a lot about living kidney donation-I didn’t before kidney disease hit home. I am sure someare afraid of the surgery and what living with one kidney will mean for them.

Here is some basic information:

Some people can live a healthy life with one only one kidney.
Donor surgery can be done laparoscopically.
The recuperation time is usually quick.
The cost of the evaluation and surgery is covered be the recipient’s insurance.
You get a nurse assigned specifically to you to look out for your best interests.

Thank you for taking time to read this story. If you want to donate or have questions, you may contact theUniversity of Kentucky Transplant Center at (859) 323-2467.
 
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BlueWorldOrder74

BlueWorldOrder74

Heisman
Oct 9, 2015
14,099
37,416
78
Thoughts and prayers OP.

 
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GonzoCat90

Heisman
Mar 30, 2009
32,377
34,559
0
Glad to hear your situation is moving in the right direction. While we may not be able to give an organ, is there a gofundme page or any place where we can donate to help out?
 
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Bigdaddyboo71

Junior
Jun 14, 2017
33
208
0
GonzoCat90 said:
Glad to hear your situation is moving in the right direction. While we may not be able to give an organ, is there a gofundme page or any place where we can donate to help out?
Click to expand...
Working on a few things. I have a coordinator At UK that is giving me help and ideas. This is one of the hardest things I have ever done. Dialysis is hard but my will to live is strong!
 
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Bigdaddyboo71

Junior
Jun 14, 2017
33
208
0
Tyblue22 said:
how old are you Bigdaddyboo71?
Just thought about it, tell us about you. Maybe it will help possible donors put a personal touch on this, get to know you more. Im rooting for you man
Click to expand...
I am 47 be 48 this month on the 26th. I have 3 kids my oldest just turned 24 she works as a correctional officer in Lexington. My middle daughter turned 18 this month she is graduating for Corbin high school this year and attending UK in the fall in honors college to be a doctor and also in band! My youngest son is a 8th grader in Corbin! My wife is a nurse for over 30 years. Been a Uk Fan all my life grew up in Manchester and live in the London|Corbin area since I graduated high school.
 
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M

minjo

Senior
Jan 7, 2006
6,107
909
0
Unfortunately, I will not be able to donate, because of two things.
The fact that I have been a diabetic for several years, and my age of over 81, I would be rejected automatically.
All I can do is pray for you to find a match for the surgery.
Good luck to you, and I will include you and your family in my prayers.
 
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C

catfando

All-Conference
Mar 31, 2009
1,548
1,725
113
Thoughts and prayers for ya. My oldest daughter was born with one kidney. Lives a very normal life. Just has to be careful if she plays contact sports like basketball. She’s in her 3rd year of JROTC. Thinking about Military after HS. But unsure if she could join due to her only having one kidney. We’ve asked about it and have gotten mixed answers.
 
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J

jrm693

All-Conference
Jan 14, 2007
12,385
4,235
68
Sorry you have to go through this, hope that you can get the transplant and have many good days ahead. My granddaughter was diagnosed with T-Cell Lymphoblastic Lymphoma, she was a picture of health and a active volleyball player one week and now we are looking at a 2 year cure program, with lots of suffering in between, my thoughts and prayers are with you, her and all that are suffering. Keep the faith.
 
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A

ashbergh

Senior
Sep 28, 2007
455
847
0
A friend of ours recieved a liver about a year ago and she has been doing incredibly well. I have cystic fibrosis and will one day have a lung transplant so I can truly imagine your fears and anxiety right now. I hope you find a donor quickly and your kidney makes you feel better than you ever have!!
 
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kentuckyrld

Senior
Mar 30, 2007
11,745
864
0
Bigdaddyboo71 said:
Some of youmayknow that I have kidney disease. Over time,my kidney disease has gotten worse andnow they are not working enough to keep me alive. This is what I’m dealing with now, and my options are limitedto dialysis treatments for the rest of my life or a kidney transplant.

Getting dialysis requires me to do it five nights a week for about 3 hours a night. This works well enough to keep someone alive but is not like a working kidney. A transplant would offer me the hopes of living longer,healthier and more normal life. It would also give me more time to do the things I love like spending time with my family and friends.

Getting a kidney transplant is not easy. There are over 100,000 people waiting for a deceased donor. Time isnot on our side. Some people wait for many years and others die while waiting. The average wait time for a deceased donor is about 5 years. There is another option: receiving a kidney from a living donor.

Asking friends or family members to consider donating a kidney is difficult, but it greatly improves the chances of getting a transplant and improves my chances of living longer and healthier.

You might not know a lot about living kidney donation-I didn’t before kidney disease hit home. I am sure someare afraid of the surgery and what living with one kidney will mean for them.

Here is some basic information:

Some people can live a healthy life with one only one kidney.
Donor surgery can be done laparoscopically.
The recuperation time is usually quick.
The cost of the evaluation and surgery is covered be the recipient’s insurance.
You get a nurse assigned specifically to you to look out for your best interests.

Thank you for taking time to read this story. If you want to donate or have questions, you may contact theUniversity of Kentucky Transplant Center at (859) 323-2467.
Click to expand...

I pray that you will find a donor quickly and have great success with your transplant. However, I would like to point out that my niece was on the transplant list for several years at UK and never got a transplant. Finally, out of desparation, she went some other places. The hospital in Charleston, WV put her their list and she got a donor there in less than two months. The surgery went fine and with God's help, she is now doing great, My advice is for you not to depend on just one location if that is something you can do.
 
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C

Cal-4-Three

All-Conference
Apr 2, 2011
1,591
1,844
0
Bigdaddyboo71 said:
Some of youmayknow that I have kidney disease. Over time,my kidney disease has gotten worse andnow they are not working enough to keep me alive. This is what I’m dealing with now, and my options are limitedto dialysis treatments for the rest of my life or a kidney transplant.

Getting dialysis requires me to do it five nights a week for about 3 hours a night. This works well enough to keep someone alive but is not like a working kidney. A transplant would offer me the hopes of living longer,healthier and more normal life. It would also give me more time to do the things I love like spending time with my family and friends.

Getting a kidney transplant is not easy. There are over 100,000 people waiting for a deceased donor. Time isnot on our side. Some people wait for many years and others die while waiting. The average wait time for a deceased donor is about 5 years. There is another option: receiving a kidney from a living donor.

Asking friends or family members to consider donating a kidney is difficult, but it greatly improves the chances of getting a transplant and improves my chances of living longer and healthier.

You might not know a lot about living kidney donation-I didn’t before kidney disease hit home. I am sure someare afraid of the surgery and what living with one kidney will mean for them.

Here is some basic information:

Some people can live a healthy life with one only one kidney.
Donor surgery can be done laparoscopically.
The recuperation time is usually quick.
The cost of the evaluation and surgery is covered be the recipient’s insurance.
You get a nurse assigned specifically to you to look out for your best interests.

Thank you for taking time to read this story. If you want to donate or have questions, you may contact theUniversity of Kentucky Transplant Center at (859) 323-2467.
Click to expand...

Praying for you!
 
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L

LostinIndiana

Junior
Mar 23, 2003
1,255
390
0
I have been on dialysis for the last fifteen years and am finally getting a transplant in the next couple of months. If you haven't thought about doing hemodialysis at home then you really should. It appears as though you are doing peritoneal at home now, but you could easily take one more day off per week if you switched to home hemo. Most people don't like either sticking themselves or having their caregiver do it but it really isn't that big of a deal once you get used to it. I have stuck myself for twelve years at home and now I don't want anyone else to do it. Another benefit is that life expectancy on the NXstage machine is nearly that of transplant.
No dialysis option is fun for sure, but the plain fact is that it is three to four years wait for a cadaverous kidney and maintaining a positive attitude is really a must. It is much easier to do when you feel better and can have a good routine by doing hemodialysis at home. If you have any questions about this process just send me a personal message and I am glad to tell you anything that you need to know.
 
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