Wow what a great prayer! Thank you so much for praying for me with the beautiful prayer!!
I found something out at my specialist today…
- Thread starter DawgsNCowboys87
- Start date
Very much appreciated as that’s definitely what I need. Also if anyone is wondering why I’m using the Love emoji, I feel it’s much better to show my gratefulness and how much more these prayers and incredible replies mean to me even if they look a little odd maybe.
Well thank you from the bottom of my heart especially your prayers! Calling me an inspiration is of the utmost compliments you could ever give me. I truly thank you for such a kind and perfect post I’ve ever received. I just wish I could encourage folks who are suffering like me to just post about it. Don’t let your manliness block the way when you need help. I struggled with it and nearly died recently until i decided to be an open book and at least have some great folks praying for me. I could’ve just remained being the tough guy who was wrecked inside as well as thinking I could carry my soulmate of 15 years problems on top of mine. I was fooling myself as things got worse and worse. I did manage to help carry her rare syndrome that hit her out of absolutely nowhere while she was walking. She ended up with a large sacral wound tailbone area. So I debrided the wound even when I was barely able to bend at all and then used alginate and when it got smaller switched to collagen almost had it healed. This is when she had to go to Northeast Medical Center in Tupelo as it had gotten somehow infected even though I was using $40 a piece wound dressings that guaranteed completely no infection. I said all that to say this. I turned it over to the lord and nearly a full year later her wound just closed. However instead of rushing her to have her procedure for a Syndrome called PRES. We have a nurse who’s amazing and checks on it. She my fiance Kaylee will be walking within 3 weeks to 4 at the very most. I’ve been with her through every step. As I am going to need my soulmate with me if I can just get by until she’s back on her feet. Then we’re on a Jet straight to the Mayo Clinic in Rochester, MN for my surgery and my second trip there.
You have been absolutely great to me and concerned so I am about to have some updates to drop. Way beyond my usual blood-oxygen saturation being incredibly low and my pain level through the roof. Like things moving forward. First thing I have to do is go see if i likely have a pneumothorax or collapsed lung. However even though that has been the case before. I honestly think and my last MRI this year before I can no longer handle 3-4 hours of MRI on a hard slab as badly mangled as my spine is. My Dr. agrees that it’s from my spinal cord being compromised and being squeezed on like a boa constrictor. Problem is it’s affecting almost every function of my body so yeah i trust his judgement. Or it could be both and it wouldn’t be the first time. I’ve been put to sleep and had my lungs washed out and even aired back up but it didn’t work as I just leaked the air right out. This time I just know it’s my spine which controls everything. From the brain stem down. My oxygen level today is 78% which Is ultra deadly to go to bed too. Aswell as in the day. However things are starting to line up in my Fiancé and me as well. I’m determined to see her through a small procedure then she and I can hop on a a Delta 757 or MD-90 and be right there in Rochester.
Prayers for her prompt, successful operation with no set backs. And for safe travels to MA. And for your next steps. And for a strengthened relationship for you both with the Lord.
You said in a post that you didn't see yourself as brave. You keep taking that next step, not just for you, but for her as well. I'ld say that had some bravery in it.
You said in a post that you didn't see yourself as brave. You keep taking that next step, not just for you, but for her as well. I'ld say that had some bravery in it.
in less than a month or earlier if i can’t wait.
It’s like fighting a large, aggressive bear at this point. I’m trying to be here around her when she has this upcoming procedure to reverse the syndrome and get rid of the only roadblock from her being able to walk like she has all her life—the spasticity in her legs being the only thing holding her back. It’s as if her legs are spring-loaded almost, and she can’t control the natural ability to do it with ease that she’ll have after her procedure.
It is a somewhat small procedure that involves using Botox plus an intrathecal baclofen pump. This is maybe 2–3 weeks away at the longest, but as terribly as I want to wait and celebrate her achievements, it’s getting almost too life-threatening to push it. I just am incredibly grateful that I wake up when I go to bed. I’ve got to watch out for blood clots forming. It’s just a bad time where I don’t know which to do. I could really use her coming with me, and that’s what she wants. So I pray that it works out. I apologize that I replied to an older post when I didn’t realize unil it was too late.
I definitely try I at least make sure my Fiance feels loved and I find a way to make her laugh with our inside jokes and even at the worst times I make her laugh by making fun of myself lightly. She’s also absolutely hilarious as heck. It blows my mind how funny she is. I also try to enjoy TV with her on our 70” LG OLED. We enjoy each other every minute of the day even after 15 years. I’m a lucky man with her.
Well I most certainly appreciate it an awful lot! In all seriousness it’s what I need plenty of as he can work Miracles as I’ve witnessed it before more than once myself.
I’m very very unwell and I’m feeling and perplexed at why you posted that here? It’s not like I don’t understand it. In this sense does really make sense. Also yes I’m referring to the photo wtf you troll… I didn’t open borders so wtf you trying to say is what I wanna know. Another thing is I have some new information have some real information for people that care so unless you have a heart don’t bring political stuff into here plz. Go watch your Myron Gains videos. I’ll be back before long guys I’m miserable and I can’t get my oxygen level up or my heart rate and spine pain down I am miserable. I’ll be back pretty soon after my appointment.
Appreciate you and not well I’m dealing with super bad pain and my pulse oxygen level is 81% and my pulse is running high. Toprol XL and my A-Fib meds aren’t working I’ve been up all night just trying to be still and find some comfort. I’ll be back on later to see what they say. Thanks so much!
I'm wondering if he didn't get hacked. That's not like GloryDawg.
Either way, still praying for you, and hoping for the best for you and your fiance.
Posted on wrong board by mistake. Could not delete it. Just ignore it and move on.
@DawgsNCowboys87 .... checking on you this morning! I know things are tough, but stay in the fight, put a smile on your face, exercise gratitude the best you can, and just move forward a little at a time. Be positive, be strong
Praying over you this morning
Praying over you this morning
I’ve been a silent follower and supporter of this thread. I really do hope you can get some relief from the discomfort and some good news. Rooting and praying for you.
I’ll be back shortly guys to give you info an am blessed to have y’all’s prayers and truly caring for me. See y’all in a few hours. I’m gonna rest a few more hours as i absolutely have no energy. My fluid/bleeding problem if worse, I’ve worn myself out trying to treat it etc and change socks among other things. Most of my right and left hip have been literally eaten away it’s like, just doesn’t make sense. It’s gone all I have it two excruciating painful big knots on each side. Sorry I didn’t spell check this or proof read and typed quickly. Talk soon with hopefully some answers. Trust me I do not feel sorry for myself but this is getting flat out unbearable. Every morning I’m thankful and surprised that I’m still waking up once I ever do dose off.
Well I said you I’d be back to give update but it’s pretty serious. Which means deadly and I just don’t want to admit it. I’ll tell yall everything I learned and more I’m just trying to rest a bit. I’ll update you wonderful people that have prayed for me from the heart and people rooting for me and people like “she hate me” who has been a real follower and caring like “skip dawg” and many many others who don’t shall name before either this thread end with me or I get that second/third chance to avoid the inevitable before very long. I burning and hurting on to of everything else. I have these places on my arms legs and other places that are of really bad psoriasis and now getting worse and seem to be staring to turning to erythrodermic psoriasis. It’s an autoimmune response. It’s already burning and feels rough so I’m going to start a round of meds to hopefully stop it. Please don’t look up pictures and think I look like some freak as I haven’t reached that level yet. It just looks like I’m starting to move in that direction. I’ll talk to yall more later I have cream that usually clears mine up but it is resisting now because in my case. I may have no choice but the hospital if these new prescriptions don’t work. This isn’t all I learned I’ll be back soon. I knew when I was diagnosed there was a small chance of all this but I thought “surely not me”. I was wrong. Sorry for not proofreading guys.
Can someone get Taylor and Bothwell to both start for me. I’m kidding. Halfway. Nah kidding because I need a distraction and is they’re ready and playing like they were then I’d be excited. Too many ifs, I know but what if Lebby is tricking Oklahoma and Brent Venables? I doubt it
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Please don’t take this wrong but at least I can have the peace my loyal fiancé of 15 years will be financially set if I pass. Believe and make no mistake we are about to get married soon when she’s walking and I will fight this until there is there is no fight left in me. Which will be awful hard to bring me down just out of sheer love for her as well as many others I don’t want to experience this as me and my grandmother are very close along with family and close friends. Including my friend from way back when we were 5 or 6. Vince, also my other best friend who checks on me a lot Colby Langston. Many good friends. Although I don’t know you guys on a first-name basis or in person ya’ll have been excellent to me and actually caring not just pretending. I’ll never forget it. Good day to you all. I’ll tell you what I found out is thought be causing all the fluid and bleeding when I’m not so worn down.
The Church is the body of Christ. All those who are members of the Body of Christ are brothers in Christ. Rest easy my brother. One day you will have a new body free from pain and bask in the light of God's glory.
Keep fighting brother. You are one tough SOB and I'm not going to quit praying for you.
That’s what i thought to be honest, but your explanation makes perfect sense. Thanks so much for that reassuring post. I’m only able to watch our church service on YouTube these days. However my pastor comes to see me and pray for me which means a lot to me. He also bring us communion as well. He’s a really great pastor as well as s person and we’re lucky to have him! I wanted to make you know how I appreciate your super kind post about having a new body free of pain and misery and bask in God’s glory! What an immeasurably beautiful thing that will be!
My apologies to y’all, as it took me an hour plus to type that one reply because my eyes are really struggling, but mostly I cannot hold my head up. I keep making grammatical mistakes and then having to fix them, as I’ve dozed off about every few words. I’ll tell y’all about the biopsy plus endoscopy to be done in my gut because the CT showed damage, and I’m severely swollen there—a little worse now.
I absolutely will, but it’s getting so hard, and I am always in so very much pain, as well as flat-out having no energy anymore. I’ll never give up as long as there’s breath in my body. I don’t give up when fighting to live. I definitely have people praying for me, as I don’t know how I’ve woken up with my blood-oxygen averaging in the upper 70s to low 80s. Even some nights and mornings, it’s gotten as low as 66%, which is brain-damage levels, even death. I’ve noticed a difference in my ability to remember things and also many other things it can affect. Thanks so much for your very nice and appreciated post!
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I really do hope you know I’m doing all I can to express my gratitude and i couldn’t do it without your prayers. I just wanted to hop on any say that. Also I got woken during my rest and I have a real update to give. In some hours. Not late.
My prayer for you and your fiancé
Ephesians 3:14-21
14 For this reason I kneel before the Father,15 from whom every family[a] in heaven and on earth derives its name. 16 I pray that out of his glorious riches he may strengthen you with power through his Spirit in your inner being, 17 so that Christ may dwell in your hearts through faith. And I pray that you, being rooted and established in love, 18 may have power, together with all the Lord’s holy people, to grasp how wide and long and high and deep is the love of Christ, 19 and to know this love that surpasses knowledge—that you may be filled to the measure of all the fullness of God.
20 Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us, 21 to him be glory in the church and in Christ Jesus throughout all generations, for ever and ever! Amen.
Ephesians 3:14-21
14 For this reason I kneel before the Father,15 from whom every family[a] in heaven and on earth derives its name. 16 I pray that out of his glorious riches he may strengthen you with power through his Spirit in your inner being, 17 so that Christ may dwell in your hearts through faith. And I pray that you, being rooted and established in love, 18 may have power, together with all the Lord’s holy people, to grasp how wide and long and high and deep is the love of Christ, 19 and to know this love that surpasses knowledge—that you may be filled to the measure of all the fullness of God.
20 Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us, 21 to him be glory in the church and in Christ Jesus throughout all generations, for ever and ever! Amen.
So we are blessed with good news for my fiancé! I apologize if I’ve posted it already but didn’t think so. Her wound has closed and is healed. The wonderful nurse of hers that comes by and checks on it said so also. We’re keeping it covered and treated daily or her cna is I mean to let the skin get as strong as it would be normally. Just to make sure it can’t be pushed too hard and go backwards before her reversal procedure and especially for physical therapy and anything else. As far as me my Gastrointestinal Dr. will be doing an endoscopy as well as a biopsy. Since they determined that my gut has issues from my CT and for a guy with a metabolism that turns fat to muscle at an incredible rate all my life my gut is in incredibly swollen but no fat. I’m praying that’s at least the cause of this humongous amount of fluid buildup and they can do something about it. The very second I go from my legs and feet being raised up in my bed to them being down. The fluid goes straight to my legs and feet. Heart Cath didn’t help it, nor did the Urologist either but I have a feeling this will reveal the source of it. Or I’m praying it does. So that something can be done. I could use a win in the worse way!! Also getting an expedited referral to pain management if I can hold until my fiancé can go with me to the Mayo Clinic I’m going go to need much more relief as it’s getting worse by the day. 
Also Btw the pain had now Trippled itself literally tripped itself that fast. I’m currently able to only get out the bed every so often. I better get that damn care I need damn quick. I’lm paying and hope yall pray for mr. Please pray for Mr ya’ll.
Mmmmmm
Mmmmmm
Please believe me I’d never be dramatic guys there ǐs a very good chance I go to the hospital. Even with my pain tolerance I can’t live like this.
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